Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a devastating genetic condition that makes even minor friction cause wounds and scarring. The new documentary Matter of Time, premiering at Tribeca Festival, is spotlighting the urgent need for research and cures. If you or someone you know experiences unexplained skin fragility or blistering, early diagnosis can change outcomes. 📸 photo credit: Mayo Clinic & American Academy of Dermatology Book a consult: www.drannachacon.com | Ann
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137K views · 859 reactions | Siblings Nur and Muhammad are often referred to as ‘butterfly children’ because their skin is as fragile as wings. They were born with a rare skin condition called epidermolysis bullosa. | SBS News | Facebook
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