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In Junctional Epidermolysis Bullosa severe babies (JEB-S), the voice box (larynx) can continually blister which causes the vocal chords to get scarring. It doesn’t stop there, blistering can occur inside the mouth, oesophagus, windpipe and nose too, leading to respiratory issues. Hearing Darcie babble is something we’ll never get bored of. We know one day she might not be able to babble like she does now. But we’re making the most of hearing it for what it is right now. 🦋❤️ https://www.justgivi
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Short videos

0:57
Demystifying Junctional Rhythm Everything You Need to Know
830 viewsAug 23, 2024
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