Peroxisomal disorder - Alchetron, The Free Social Encyclopedia
Peroxisomal disorder - Alchetron, The Free Social Encyclopedia
Aug 18, 2017
alchetron.com
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What IS a peroxisomal disorder? Some of our favorite scientists help us explain what exactly a peroxisomal disorder is. Give this video a share and help us spread awareness on peroxisomal disorders leading up to our annual awareness day #PAUSEwiththeGFPD! #GFPD #peroxisomaldisorder #raredisease #science #PAUSEwiththeGFPD | The Global Foundation for Peroxisomal Disorders
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Gideon has a peroxisomal disorder. It comes with a host of challenges but to put it simply, the care he requires is the same as an infant. He's totally dependent on me to meet his every need. Waking up for him is difficult, but that's because he is usually up in the middle of the night. Nevertheless the morning routine is the same. Diaper change, breakfast, and therapy. Gideon was never able to swallow solid foods so he's on a totally pureed diet. Most mornings I blend a smoothie for him. We fee
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