Living with Pompe disease means lots of appointments and lots of specialists. I’ve seen 15 DIFFERENT types of specialties over the years, and yesterday I added a new one to the list: endocrinology. They’re taking a deeper look at my bone density, which can look a little different when you’re in a wheelchair. I’ll be having (another) DEXA scan soon so we can figure out the best course of action moving forward. One more step in taking care of my health 💪 Also… can we talk about how pretty this lo
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